PSYCHOLOGICAL BURDEN IN β - THALASSEMIA AFFECTED FAMILIES

Abstract

Objective: Assessing the psychological burden on families affected by Thal -assemia may face, controlling for cultural and social setup.
Methodology: A cross-sectional survey is done with the help of structured
interviews and questionnaires. Self-designed questionnaire is used to deter -mine the demographics of the patients, whereas questionnaire developed by
Ratip and Modell (1996) used to gauge the psychological pressure the thal-assemia affected family faces. The survey was conducted in different health
centers of Peshawar that specialize in providing medical facilities to patients
suffering from blood disorders. Logistic Regression and Chi Square test of
Association used to arrive at results.
Results: The results revealed that the parents of a Thalassemic patient face
problems with social interaction. They are anxious about their child's health,
and face isolation. However, due to cultural setup their family supports them
but the disease of the child does not affect their relationship with other chil-dren and spouse.
Conclusion: Cultural and social setup affects the magnitude of the psycho-logical burden inflicted on a Thalassemia affected family. Families living in
rural areas found more disturbed. The effect of different factors on social life
differs for male and female patients.